Ava and Jake are the typical (ridiculously adorable!) siblings. They are both at the age where sitting still is just-not-so-fun and their parents really wanted an image with the two of them together. Can all parents of young children relate to this or what? :)
In addition to being spunky and gorgeous, Ava has Cystic Fibrosis. Her parents say that she’s doing great, and they’re hoping it stays that way! Unfortunately, there are a lot of other children and adults with CF who aren’t so lucky. Ava and her family are helping to raise money and awareness for the Cystic Fibrosis Foundation – to help fund research for a cure. Ava’s parents share more of her story below.
“Ava was diagnosed with Cystic Fibrosis at 2 months, and us being new parents, we were scared – we had never even heard of CF before.”
“Ava was diagnosed with Cystic Fibrosis at 2 months, and us being new parents, we were scared – we had never even heard of CF before. It was a quick learning curve though, and the three of us now have our new normal. Cystic fibrosis is an inherited chronic disease that affects the lungs and digestive system of about 30,000 children and adults in the United States (70,000 worldwide). A defective gene and its protein product cause the body to produce unusually thick, sticky mucus that clogs the lungs, leads to life-threatening lung infections, obstructs the pancreas and stops natural enzymes from helping the body break down and absorb food. To combat these effects, Ava has to take pancreatic enzymes before every meal so that she can gain the nutritional value from the food. She also does a treatment everyday, where she wears a vest that vibrates her chest to break up the mucous inside her – along with taking various daily medications. To help the CF Foundation raise money & awareness to find a cure, in 2011 we started a fundraising team called G-Crew. We walk every year at the Doylestown Great Strides event in May, and have started to fundraise year round.” – Chris and Christine Gardyasz
Register for the walk or donate to Ava’s team here – www.gcrew.org
Help raise awareness for Cystic Fibrosis!
Please share Ava’s story & leave a comment for her and her family.
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